Out of the Mouths of Babes

I love you forever I like you for always As long as I'm living My baby you'll be. It's ironic that grandparenthood and Parkinson's disease entered my life at the same time. In 1980, the first two of my grandchildren were born, and in the same year, my Parkinson's manifested itself. The arrival of grandchildren brought pure delight the arrival of Parkinson's brought frustration and sorrow. When the time came to share the news, I received two very different messages Shout from the rooftops that...

Relationships with Our Adult Children

You may give them your love but not your thoughts, You may house their bodies, but not their souls, For their souls dwell in the house of tomorrow which you cannot visit. . . . You are the bows from which your children as living arrows are sent forth. Whenever I am ill, even at my age, the person I still yearn for is my mother. She is the one who could always make me feel better, just by the touch of her hand, the way she expressed her concern, and the special things she cooked she is the one...

Spouses Special and Otherwise

In this chapter, however, I want to concentrate on the role of the spouse as caregiver, for the benefit of both those with Parkinson's and their spouses as they adapt to the changes they encounter in their lives. (Of course, some of this chapter is also applicable to the relationship between people with Parkinson's and other caregivers, including adult children.) The spouse I know best, of course, is my husband, Blaine who is mostly very special but is sometimes...

Nutrition That Affects Our Lives

If we are really serious about controlling our Parkinson's symptoms, we are very deliberate about eating well. Our level of nutrition affects the quality of our lives. For some of us, balancing a diet and meeting our special needs may be a bit tricky without proper management. In this chapter, I want to share with you the aspects of nutrition that are unique to people with Parkinson's and some techniques for assuring that our bodies get what they really need. The first thing we have to remember...

Sources of Adaptive Equipment Clothing and Other Good Things

Note The authors have compiled this list of sources as a service to readers, but we have no personal experience with the listed businesses and organizations and make no endorsements. Many of the companies that are listed offer catalogs. Ableware Independent Living from Maddak, Inc., 6 Industrial Road, Pequannock, NJ 07440-1993. Telephone 973-628-7600 www.maddak .com. Bathroom, bedroom, communicating, dressing, drinking, eating, educational aids, grooming, household, kitchen, mirrors, mobility,...

Appendix B

American Parkinson Disease Association Information and Referral Centers Center 619 19th Street S Birmingham, AL 35249 205-934-9100 www.neuro.uab.edu Center University of Arizona Department of Neurology 616 N. Country Club Road, Suite C Tucson, AZ 85716 520-326-5400 800-541-4960 www.azapda.org APDA Information and Referral Center Center 210 Woodbine Hot Springs, AR 71901 501-318-1690 800-407-9295 APDA Information and Referral Center Orange Coast Memorial Medical Center 9940 Talbert Avenue, Suite...

Info

New Perspectives in the Treatment of Parkinson's Disease. Clin. Neuropharmacol. 9, suppl. 1 (1986) S37-S46. LeWitt, P. A., et al. Discussion. Clin. Neuropharmacol. 9, suppl. 1 (1986) S47-S54. Lieberman, A. N. Adrenal Grafts Transplanted into the Brain as a Treatment for Parkinson's. APDA Newsletter (Fall 1987) 1, 5-6. -. Brain Transplants A Report on Experimental Treatments for Parkinson's Disease. APDA Newsletter (Winter Spring 1988) 1-2. -. Curing Parkinson's Disease in Our...

Coping with Frustration

Parkinson's disease interferes to some degree with all the bodily movements that people take for granted. The most ordinary tasks and activities become difficult and taxing, especially toward the end of a dose of medication. This interference in everyday activities produces deep feelings of frustration in the person with Par-kinson's feelings that I, for one, have never been able to overcome entirely. However, I have found ways to minimize the problems that cause these feelings, and they are...

Medications and Therapies

Life is short, the art of medicine long, timing is exact, experience When I think of medications that treat the symptoms of Parkinson's disease, I picture in my mind a time line with Sinemet as the focal point. Other medications fall into categories of Before Sine-met or After Sinemet. Most of our knowledge about the treatment of Parkinson's has been gained since the 1970s. It is important for people to understand the different types of medication that are used to treat Parkinson's disease and...