Rett Syndrome Association International A

support group for parents of children with rett syndrome founded by parents in early 1984 and dedicated to better understanding the condition. Members include parents, relatives, doctors, therapists, researchers, and friends interested in providing a better future for girls with Rett syndrome. International Rett Syndrome Association (IRSA) supports medical research to determine the cause and find a cure for Rett syndrome, increases public awareness of the condition, and provides information and support to families of affected children. (For contact information, see Appendix I.)

0 0

Post a comment