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Pregnancy Miracle

Pregnancy Miracle by Lisa Olson

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Sadness. See also Grief at diagnosis, 10 of siblings, 318 Safe sexual practices, 376 Salivary tumors, 250 Scandi-shake, 284 School issues, 288-312. See also Learning disabilities; Special education cognitive late effects, identifying, 299-310 communicable diseases, avoiding, 296-297 communication with schools,

288-290 involving school and classmates, 289-290 keeping up with work,

290-291 legal rights, 300-302

meeting with teachers and staff,

293-294 preschoolers, 297-298 resources for, 488-489 returning to school, 292-296 sibling issues, 292 terminally ill children, 310-311 videotape resources, 494 Schoolmates. See Classmates Scopolomine patch, 196 Secondary cancers, 250

stem cell transplantation and, 419

Second opinions, 75 obtaining, 117-118 on relapse, 388-389 on stem cell transplantation, 394 Sedation drugs used for, 48-49 for pain control, 205 for radiation therapy, 240-242 Senoket, 225 Septra, 194-195 Serum glutamic oxaloacetic transaminase (SGOT), 460 Service organizations, 267,

463-464 Sexual practices, 376 Shingles, 221 Shwachman syndrome, 17 Siblings, 313-334

abandonment, feelings of, 317 absolute neutrophil counts

(ANCs) and, 217 anger of, 318-319 communication with, 39 concerns of, 315 death and, 424, 429 decision-making with, 331 diagnosis, talking about,

313-314 emotional responses of,

315-320 experiences of, 320-329 fears of, 316 friends and, 89-90 gifts for, 332-333 grief of, 438-440 guilt of, 317

household rules, application of,

346-347 jealousy of, 316 lack of time with, 348 at memorial services, 430,

439-440 parents, concerns for, 320 positive outcomes for, 333

Siblings (continued)

resources for, 486-487 sadness of, 318 school issues, 292 stem cell transplantation and, 410

suggestions for helping,

329-333 summer camps for, 168-169 support groups for, 159 taking care of, 433 as transplant donors, 402 worries of, 319 Sick leave donating hours, 93 using hours, 99 Side effects. See also Learning disabilities; Nutrition bed wetting, 228-230 chicken pox, 220-221 from clinical trials, 72 constipation, 224-226 dental problems, 230 diarrhea, 223-224 of enteral nutrition, 286 fatigue, 226-228 fertility issues, 370-371 hair loss, 210-213 heart problems, 371-372 immune system problems,

374-376 long-term side effects, 370-375 low blood counts, 215-219 mouth sores, 231-232 nail problems, 233 nausea, 213-215 pneumonia, 219-220 from radiation therapy,

245-250 skin problems, 233 smell changes, 232 from stem cell transplantation,

416-419 steroid medication problems, 234

taste changes, 232 throat sores, 231-232 vomiting, 213-215 weakness, 226-228, 373-374 6-MP, 184-185

6-Thioguanine (6-TG), 190-191 Skin problems, 233 Sleep patterns, 226 Small claims court, 265 Smells changes in, 232, 271-272 nausea and, 214 Smoking risks, 375-376 Snacks, nutritious, 278-279

Social Security, 268 Social workers conflict resolution and, 120 counseling with, 164 relapse treatment, discussing, 391

support from, 154-155 Somnolence syndrome, 246 Special education eligibility for, 304-305 in private schools, 305-306 recordkeeping, 310 Sperm banking, 244, 371, 418 Spinal radiation female fertility and, 370 thyroid gland and, 244 Spinal taps, 3

intrathecal medication, 25 on last day of treatment, 359 procedure for, 43, 56-58 relapse diagnosis at, 384 Spleen enlargement, 2 SSI (Supplemental Security

Income), 265 State-sponsored supplemental insurance programs, 267 Stem cell transplantation, 393-420 for acute lymphoblastic leukemia (ALL), 26 allogeneic transplants, 395-397 aseptic necrosis, 418-419 autologous stem cell transplants, 31, 397 bibliography information,

482-483 bleeding complications, 414 for chronic myeloid leukemia

(CML), 34 colony-stimulating factors,

195-196 complications, 410-416 conditioning regimens,

407-408 confidentiality issues, 409 dental problems and, 417 donating marrow, 406-407 eating difficulties, 415-416 emotional responses, 409-410 engraftment, 408 eye problems, 417 facility, choosing, 402-404 failure to engraft, 410-411 finding donors, 400-402 friends organizing drives, 91 graft-versus-host disease

(GVHD), 413-414 growth issues, 418

hemorrhagic cystitis, 414-415 human leukocyte antigens

(HLA), 395 infections, 411-413 for juvenile myelomonocytic leukemia (JMML), 34 long-term side effects, 416-419 mucositis, 415 necessity for, 393-394 online resources, 484-485 organizations providing information on, 468-469 paying for, 404-406 peripheral blood stem cell transplants (PBSCTs),

398-399

placental blood/umbilical cord blood stem cell transplant,

399-400 procedure for, 407-409 puberty issues, 418 relapse and, 417 secondary cancers and, 419 syngeneic transplants, 397-398 thyroid function and, 418 types of transplants, 395-400 veno-occlusive disease (VOD),

Sterility, 244, 371, 418 Steroid medications increased appetite, 270 problems with, 234 STI-571, 183-184 Stomatitis. See Mouth sores Stool softeners, 218, 225 Stress at diagnosis, 4 Subcutaneous injections, 59-60 Subcutaneous ports, 140-144 care of, 143

implanting of, 140-142 infections from, 144 kinks, clots and ruptures, 144 removal of, 361-362 Substance abuse, 349 Summer camps, 168-169

Camp Watcha-Wanna-Do, 159 list of, 469, 486 Sunscreens, 217, 233 Support. See also Counseling from clergy, 161-162 from religious community, 161-162 from social workers, 154-155 Support groups, 153

bereaved parents and, 437-438 bibliography information,

485-486 for children with cancer, 158-159

online resources, 486 online support, 157-158 for parents, 155-157 parent-to-parent programs, 160-161 for siblings, 159 Survivorship, 375-376 Sustacal supplements, 283 Swimming pools at hospitals, 132 Symptoms diagnosis and, 1 of relapse, 383-385 Syngeneic transplants, 397-398 Syrpalta, 61, 62

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