Parents have the legal right to withdraw their child from a clinical trial at any time, for any reason. Before doing so, however, its a good idea to talk over questions or concerns with the child's doctor. This decision should not be held against the parent, and the child will receive the best available care for her type of cancer. On the consent form signed by the parent, there will be language similar to this: "You are free not to have your child participate in this research or to withdraw your child at any time without penalty or jeopardizing future care."
Jesse was enrolled in a clinical trial to assess long-term neuropsychological consequences of cranial radiation. The testing was free, and we were glad to participate. Unfortunately, the billing department of the hospital continually billed us in error. We tried to correct the problem, but it became such a hassle that we withdrew from the study.
REMOVING A CHILD FROM A CLINICAL TRIAL 79
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