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Hair loss, 210-213 Hand washing, 216-217

pets and, 222 Hats and hair loss, 211 Headaches somnolence syndrome, 246 spinal taps and, 57-58

Healthcare team. See also Doctors; Hospitals; Nurses anger at, 8 appreciation of, 117 communication with, 112-117 conflict resolution, 119-120 cooperation with, 113-114 members of, 114-115 problems, solving, 115-117,

119-120 telling child, 36 transitioning from treatment, 422

Health Insurance Portability and Accountability Act of 1996, 381

Heart problems, 371-372 smoking and, 375-376 Helplessness at diagnosis, 7-8 Hematocrit (HCT), 456, 458 Hemoglobin (Hgb), 456 Hemorrhagic cystitis, 414-415 Hepatitis, 221 Herpes simplex virus, 412 Herpes zoster, 221 Hexadrol, 197 Hickman lines. See External catheters High-risk pools, 381 HMOs (health maintenance organizations), 108 stem cell transplantation issues, 406

Holidays, observing, 440 Home care, spouses sharing, 102 Home tutoring, 290-291 Honest communication, 337 Hope, diagnosis and, 11 Hormones, 172 Hospice care, 425-426 Hospitals, 106-108

advocating for child, 129-131 bibliography information, 481 billing, dealing with, 257-261 choosing, 110 DNR (Do Not Resuscitate)

orders, 427 doctors in, 107 dying in, 426-427 financial assistance from, 265 financial counselors, 258 floor tours, 125 food, 125-126 mistakes, checking on, 131 NO CODE orders, 427 nurses in, 108

Hospitals (continued)

nutritionists, information from,

279-280 outdoors time at, 133 parking at, 126 passes from, 132 playing at, 131-133 resource rooms, 161 rooms in, 123-124 schooling in, 290-291 staff, befriending, 128-129 telephoning from, 130 waiting in, 127-128 House-cleaning by friends, 88 Household rules application of, 346-347 improving life with, 349-355 Human leukocyte antigens (HLA), 395

finding donors, 401 Humidifiers, 217 Hydrocodone, 200 Hydrocortisone, 234 Hydromorphone, 202-203 Hydroxyurea, 183 Hypafix, 150-151 Hyperactivity and prednisone, 188 Hyperdiploidy, 22 Hypnosis, 205-206

pain management with, 45 Hypocalcemia, 399 Hypothalamus, 248-249 Hypovolemia, 399

Ibuprofen, 218 IgG infusions, 374 Imagery, 205-206

pain management with, 45-46 Imatinib mesylate, 183-184 Immodium, 223 Immune system problems, 374-376

stem cell transplantation and,

Immunizations, 375 Immunoglobulins, 374

stem cell transplantation and,

Individual Education Plan (IEP), 306-308 in Canada, 308 placement options, 308-309 related services under, 306-307 steps in, 302 transition services, 309 Individualized Family Service Plan (IFSP), 298

Individuals with Disabilities

Education Act, 300 Induction therapy for acute lymphoblastic leukemia (ALL), 24 for acute myeloid leukemia (AML), 29-30 Infections allogeneic transplant and, 396 external catheters and,

136-137 from peripheral blood stem cell apheresis, 399 from peripherally inserted central catheters, 147-148 reducing risk of, 396-397 stem cell transplantation and,

411-413 from subcutaneous ports, 144 Informed consent to clinical trials, 73-75 to stem cell transplantation, 404

Instant breakfast, 284 Insurance. See also HMOs (health maintenance organizations) appealing claim denials,

264-265 challenging denials, 264-265 comprehensive health insurance plans (CHIPS), 381

contact persons, locating,

262-263 coping with, 261-262 explanations of benefits (EOBs), 259

external catheters, placement of, 148 Health Insurance Portability and Accountability Act of 1996, 381 hospital billing, 257-261 investigational treatments, 389 loss of coverage, 268 negotiating with company, 263 organizations providing help, 471

second opinions, obtaining,

117-118 state-sponsored supplemental insurance programs, 267 stem cell transplantation, paying for, 404-406 survivorship issues, 380-382 understanding policy, 261-262 Interns, 107

Interstitial pneumonitis, 412

Intrathecal medication, 25 for acute myeloid leukemia (AML), 30 IRS Publication 502 (medical expenses), 257 Isocal supplement, 284 IV infusion ball, 137 IV (intravenous) lines at admission, 3 feedings, 285-287 starting, 58-59

Jaycees, 267

Jealously of siblings, 316 Job Accommodation Network

(JAN), 379 Job issues. See Employment issues Journals, keeping, 252-253 Junior Candlelighters, 158 Juvenile myelomonocytic leukemia (JMML), 20, 34-35 stem cell transplantation for, 394

Kaopectate, 223 Karyotyping, 22 Ketamine, 49 Kiwanis Club, 267 Knights of Columbus, 267 Kostmann syndrome, 17 Kytril, 198

Lactose intolerance, 271 Laminar air flow room, 409 L-ASP, 176-177 L-Asparaginase, 176-177 Lawyers. See Attorneys Learning disabilities, 234. See also Special education acceptance of, 312 Canada, legal rights in, 302 identifying, 299-310 legal rights, 300-302 radiation therapy and, 247-248 referral for services, 302-304 signs of, 299-300 Legal rights. See also Attorneys; Clinical trials healthcare team and, 115 learning disabilities and, 300-302 Leucovorin, 186 Leukapheresis, 398

Leukemia beginnings of, 16 definition of, 14-16 types of, 20-35 Leukemia and Lymphoma Society, 646

Leukemia-lymphoma, 18 Leukemic cells, 16 Leukocytes. See White blood counts (WBCs) Library resources, 476-477 Lidocaine, 47-48 Life skills, teaching, 347-348 Lions Club, 267 Listening skills, 337-338 Liver alanine aminotransferase (ALT),

459 bilirubin, 460 enlargement of, 2 serum glutamic oxaloacetic transaminase (SGOT), 460 veno-occlusive disease (VOD), 416 Lomotil, 223 Lorazepam, 198 Loss of control, 9-10 Low blood counts, 215-219 LPNs, 108

Lumbar punctures. See Spinal taps Lymph node enlargement, 1-2 Lymphoblasts, 16 Lymphocytes, 14, 15 Lymphopenia, 14

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