Many parents reported great success with the calendar system. They buy a new calendar each year and hang it in a convenient place such as next to the telephone. You can record counts on the calendar while talking on the phone to the nurse or lab technician and take the calendar with you to all appointments.

Each year I purchase a new calendar with large spaces on it. I write all lab results, any symptoms or side effects, colds, fevers, and anything else that happens. I bring it with me to the clinic each visit, as it helps immensely when trying to relate some events or watch trends. I also use it like a mini-journal, recording our activities and quotes from Meagan. Now that she's off treatment, I'm superstitious enough to still bring it to our monthly checkups.

I wrote the counts on a calendar or on little pieces of paper that got lost. But, to be honest, I didn't keep the medical records very well. I'm upset with myself when I think of it now.

For a long time I was unorganized, which is very unlike the way I usually am. I found that my usual excellent memory just wasn't working well. It all seemed to run together, and I began to forget if I had given her all of her pills. Then I began using a calendar for both counts and medications. I wrote every med on the correct days, then checked them off as I gave them.

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