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Calendar system, 253-254 Calorie-boosting guidelines, 278 Camps. See Summer camps Camp Watcha-Wanna-Do, 159 Canada

Candlelighters Childhood Cancer Foundation Canada, 463

Employment Insurance Act, 100-101 Individual Education Plan (IEP) in, 308

Job Accommodation Network

(JAN) in, 379 medical expense deductions, 257

medications, paying for, 267 schooling, legal rights to, 302 stem cell transplantation issues, 406

Canadian Cancer Society, 463 Candlelighters, xvii-xviii, 90,

160-161, 463 Captain Chemo, 173 Cardiac monitoring, 372 Carnation Instant Breakfast, 284 Cataracts, 417 Catheters external catheters, 134-140

peripherally inserted central catheters (PICC lines), 145-148 subcutaneous ports, 140-144 Cell types in acute lymphoblastic leukemia (ALL), 21-22 Central nervous system disease and leukemia, 18-19 Cereals, servings of, 273 Cerubidine, 180 Charitable donations, 434 Chemotherapy, 171-209. See also Side effects; Stem cell transplantation for acute lymphoblastic leukemia (ALL), 23-24, 24 for acute myeloid leukemia

(AML), 28-29 alternative treatments and, 208 antinausea drugs, 196-200 bibliography for, 481-482 calling doctor, guidelines for,

174-175 colony-stimulating factors,

195-196 description of, 171-172 dosages, 173

for juvenile myelomonocytic leukemia (JMML), 34-35 lactose intolerance and, 271 list of drugs, 175 methods for giving, 172 prophylactic antibiotics,

194-195 questions to ask, 174 as risk factor, 17-18 Chicken pox, 220-221 preschoolers and, 297 school exposure, avoiding, 296-297 Childhood Cancer Ombudsman Program contact information, 464 insurance claim denials, 264 second opinion information,

388-389 for second opinions, 75 on second opinions, 118 Child life programs, 41-42 support from, 155-156 Children's Oncology Group

(COG), 71 Chloromas, 32 Chromosomes abnormalities, 17 in acute lymphoblastic leukemia (ALL), 22 translocations, 22-23

Chronic GVHD, 414 Chronic myeloid leukemia (CML), 20,32-34 phases of, 32-33 stem cell transplantation for, 394

treatment for, 33-34 Citrotein, 284 Citrucel, 225 Classmates involving classmates, 289-290 support from, 93-94 of terminally ill children, 310 Clergy counseling with, 164 as support, 161-162 visits, 94 Clinical nurse managers, 108 Clinical trials, 67-81 assent to, 75-76 bibliography for, 481 design of, 71 enrollment in, 68 entire document, reading, 78-79

informed consent, 73-75 Institutional Review Board

(IRB) for, 72 pros and cons of, 80 protocol for, 76-77 questions to ask, 72-73 randomization, 70-71 refusing participation, 79 removing child from, 79 standard treatment and, 68-69 supervision of, 72 types of, 69-70 Clothing in hospitals, 125 Club Goodtimes, 159 CNS prophylaxis for acute lymphoblastic leukemia (ALL), 24-25 for acute myeloid leukemia (AML), 30 COBRA (Comprehensive Omnibus Budget Reconciliation Act), 268, 381 Codeine, 201

Cognitive problems, 247-248. See also Learning disabilities Colace, 225

Collection agencies, 259-260 Collegial relationships with doctors, 111 Colony-stimulating factors,

195-196 Comfort objects, 342-343

Communicable diseases, avoiding,

296-297 Communication about death, 343 with children, 38-39, 338-339 with doctors, 111 with family, 84

with healthcare team, 112-117 importance of, 337-339 improving, 349-355 with school, 288-290 Compazine, 199-200 Complete blood counts (CBCs), 2, 51

charts, keeping, 254 chemotherapy, values for children on, 456 healthy children, values for, 455

on last day of treatment, 359 low blood counts, 215-219 pattern, 460

recordkeeping chart, 461 sample lab data sheets, 457 Comprehensive health insurance plans (CHIPS), 381 Computers. See also Online resources for recordkeeping, 255 Confusion on diagnosis, 4-5 relapse and, 386 Congressional representatives, 264 Consolidation therapy, 25 Constipation, 224-226 Consumer Protection Agency, 260 Continuation therapy. See

Maintenance Control, loss of, 9-10 Counseling for blended families, 104 for depression, 345 for destructive children, 341 family counseling, 163-168 getting help, 353-354 individual counseling, 163-168 for marital issues, 103 preparing children for,

167-168 questions to ask, 166 Cranial radiation, 243-244 dental abnormalities and,

372-373 growth problems, 249 secondary cancers, 250 somnolence syndrome, 246 weakness, persistent, 373 Cyclophosphamide, 177-178

Cytarabine, 179 Cytomegalovirus (CMV), 411 stem cell transplantation and, 412 Cytosar, 179

Cytosine arabinoside, 179 Cytoxan, 177-178

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