Transition Planning

In line with the agreement on first steps, the transition process in health care should begin early and be developed in earnest with a transition plan by the age of 14. A study of young people with SHCN showed that after age 13-14 the gap between youth with disabilities and those without disabilities widened, and a transition program intervention was most successful if started by ages 11 to 14 years (51,53,55). The transition process should be a collaborative one between health care professionals, the young person, and the parents. The components of health care plan needed by the person with rheumatic disease should be identified, such as which professionals (e.g., occupational therapist, physical therapist) are needed to provide the necessary care and who the care manager will be.

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