Tools for Shared Management in Clinical Practice

To help families and health care providers understand the new roles they will assume as the young person matures, several tools such as the shared management model tool (see Table 4, Chapter 4) described in detail by Kieckhefer and Trahms (17), or check lists, examples of which can be found on the websites listed in Table 2. Each family member, the health care team, and the young person can assess their level of involvement in the transition process using the shared management tool, and the results can be used to discuss how to move to the next stage. Discussing everyone's expectations as the young person moves into self-management of their illness can be a clarifying experience and give everyone a good idea as to their ultimate role in the process. For example, discussing the family's ultimate goal of

Table 2 Examples of Web-Based Resources for Transition United States and Canada

http

//www.htrw.org

http

//www.door2adulthood.com

http

//hctransitions.ichp.edu

http

//depts.washington.edu/healthtr/index.html

http

//chfs.ky.gov/ccshcn/ccshcntransition.htm

http

//www.communityinclusion.org/transition/

United Kingdom

http

//www.transitioninfonetwork.org.uk

http

//www.dh.gov.uk/transition

http

//www.dreamteam-uk.org

http

//www.transitionpathway.co.uk

http

//www.youngminds.org.uk/publications/booklets/adulthood.php

http

//www.tsa.uk.com

Australia

http://www.rch.org.au/transition

becoming consultants in their son or daughter's medical care, which means answering only when asked during clinic sessions, can be a helpful experience for families.

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