Summary

"Listening to" the written "voices" of the young contributors in this chapter makes it is clear that they want their voices and opinions to be heard and to be active participants in their care. In the clinical setting they want professionals who understand about their diagnosis and what it is like to be a young person living with a chronic condition. Professionals need to acknowledge the challenges involved in balancing life with a chronic condition with life as an adolescent in the 21st century. Young people want to be treated with respect, to take a lead their consultations and be fully informed. Their words echo research findings in which their peers (adolescents with JIA) considered knowledgeable and honest staff as best practice in transitional care provision (10). The wealth of expertise of these young people should also be recognized in future service development and multidisciplinary medical education. A model of good practice in this area is the Youth Health Talk Project developed by the University of Oxford (www.youthhealthtalk.org). As one young participant in an adolescent rheumatology research project stated: "It's not about arthritis is it? It's about living with it." (16).

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