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1. McDonagh JE, Foster H, Hall MA, Chamberlain MA on behalf of the BPRG. Audit of rheumatology services for adolescents and young adults in the UK. Rheumatology 2000; 39:596-602.

2. McDonagh JE, Southwood TR, Shaw KL. Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology (Oxford) 2004; 43(6):737-43.

3. Shaw KL, Southwood TR, McDonagh JE on behalf of the British Paediatric Rheumatology Group. Transitional Care for Adolescents with Juvenile Idiopathic Arthritis: Results of a Delphi Study. Rheumatology (Oxford) 2004; 43(8):1000-6.

4. Shaw KL, Southwood TR, McDonagh JE. Young people's satisfaction of transitional care in adolescent rheumatology in the UK. Child Care Health Dev 2007; 33(4):368-79.

5. Donovan C, Mellanby AR, Jacobson LD, et al. Teenagers' views on the general practice consultation and provision of contraception. The Adolescent Working Group. Br J Gen Pract 1997; 47(424):715-8.

6. Balding J. Young People in 2003 University of Exeter: Schools Health Education Unit, 2004.

7. Croft CA, Asmussen L. A developmental approach to sexuality education: implications for medical practice. J Adolesc Health 1993; 14(2):109-14.

8. Britto MT, Rosenthal SL, Taylor J, Passo MH. Improving rheumatologists screening for alcohol use and sexual activity. Arch Pediatr Adolesc Med 2000; 154:478-83.

9. Beresford B, Sloper P. Chronically ill adolescents' experiences of communicating with doctors: a qualitative study. J Adolesc Health 2003; 33:172-9.

10. Klostermann BK, Slap G, Nebrig DM, Tivorsak TL, Britto M. Earning trust and losing it: adolescents' views on trusting physicians. J Family Pract 2005; 54 (8):679-87.

11. McPherson A. Primary health care and adolescence. In: MacFarlane A, ed. Adolescent Medicine. London: Royal College of Physicians, 1996:33-41.

12. Cheng TL, Savageau JA, Sattler AL, DeWitt TG. Confidentiality in health care. A survey of knowledge, perceptions and attitudes among high school students. J Am Med Assoc 1993; 269:1404-7.

13. Akinbami LJ, Gandhi H, Cheng TL. Availability of adolescent health services and confidentiality in primary care practices. Pediatrics 2003; 111:394-401.

14. Larcher V. Consent, competence and confidentiality. Br Med J 2005; 330: 353-6.

15. British Medical Association. Consent, Rights and Choices in Health Care for Children and Young People. London: BMJ Books, 2001.

16. Sanci LA, Sawyer SM, Kang MS-L, Haller DM, Patton GC. Confidential health care for adolescents: reconciling clinical evidence with family values. Med J Aust 2005; 183(8):410-4.

17. Shaw KL, Southwood TR, McDonagh JE on behalf of the British Paediatric Rheumatology Group. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford). 2004; 43(6): 770-8.

18. Balding J. Young People into the Nineties. Book 1 Doctor and Dentist. University of Exeter: Schools Health Education Unit, 1991.

19. Robertson LP, Hickling P, Davis PJC, Bailey K, Ryder CAJ, McDonagh JE. A comparison of paediatric vs adult rheumatology clinics. (1) The doctor perspective. Rheumatology 2003; 42:51.

20. Shaw KL, Southwood TR and McDonagh JE on behalf of the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in Rheumatology: a multicentre cohort of adolescents with Juvenile Idiopathic Arthritis. Rheumatology 2005; 44: 806-12.

21. Britto MT, Rosenthal SL, Taylor J, Passo MH. Improving rheumatologists screening for alcohol use and sexual activity. Arch Pediatr Adolesc Med 2000; 154:478-83.

22. Zack J, Jacobs CP, Keenan PM, et al. Perspectives of patients with cystic fibrosis on preventive counselling and transition to adult care. Pediatr Pulomonol 2003; 36:376-83.

23. Telfair J, Alexander LR, Loosier PS, et al. Providers' perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease. J Health Care Poor Underserved 2004; 15:443-61.

McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 2007; 46(1):161-8.

Reid GJ, Irvine MJ, McCrindle BW, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 2004; 113(3):197-205. Merzel CR, Vandevanter NL, Middlestadt S, Bleakley A, Ledsky R, Messeri PA. Attitudinal and contextual factors associated with discussion of sexual issues during adolescent health visits. J Adolesc Health 2004; 35:108-15. Royal College of Nursing. Chaperoning: the role of the nurse and the rights of patients. Guidance for nursing staff (July 2002). London. Publication code 001 446 (www.rcn.org.uk)

American Academy of Pediatrics. The use of chaperones during the physical examination of the pediatric patient. Pediatrics 1996; 98(6):1202. Litt IF. Satisfaction with health care. The adolescent perspective. J Adolesc Health 1998; 23:59-60.

Ginsberg KR, Menapace AS, Slap GB. Factors affecting the decision to seek health care: the voice of adolescents. Pediatrics 1997; 100:922-30. Freed LH, Ellen JM, Irwin CE, Millstein SG. Determinants of adolescents' satisfaction with health care providers and intentions to keep follow-up appointments. J Adolesc Health 1998; 22:475-9.

Chesney M, Lindeke L, Johnson L, Jukkala A, Lynch S. Comparison of child and parents satisfaction ratings of ambulatory pediatric subspecialty care. J Pediatr Health Care 2005; 19:221-9.

Margaret ND, Clark TA, Warden CR, Magnusson AR, Hedges JR. Patient satisfaction in the emergency department — a survey of pediatric patients and their parents. Acad Emerg Med 2002; 9:1379-88.

Britto MT, DeVelis RF, Hornung RW, et al. Health care preferences and priorities of adolescents with chronic illnesses. Pediatrics 2004; 114:1272-80. Barlow JH, Shaw KL, Harrison K. Consulting the "experts": children's and parents' perceptions of psycho-educational interventions in the context of juvenile chronic arthritis. Health Educ Res Theory Pract 1999; 14:597-610. Oppong-Odiseng ACK, Heycock EG. Adolescent health services — through their eyes. Arch Dis Child 1997; 77:115-9.

Young B, Dixon-Woods M, Windridge KC, Heney D. Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. Br Med J 2003; 325:305-9. Sawyer SM, Tully M-AM, Colin AA. Reproductive and sexual health in males with cystic fibrosis: a case for health professional education and training. J Adoles Health 2001; 28:36-40.

Royal College of Paediatrics and Child Health. Bridging the Gap: Health Care for Adolescents. June 2003 (www.rcpch.ac.uk)

Kari JA, Donovan C, Li J, Taylor B. Teenagers in hospital: what do they want? Nursing Standard 1999; 13:49-51.

Jacobson LD, Wilkinson C, Owen PA. Is the potential of teenage consultations being missed? a study of consultation times in primary care. Family Pract 1994; 11:296-9.

42. Royal College of Paediatrics and Child Health. Coming out of the shadows June 2005 (www.rcpch.ac.uk)

43. Department of Health. You're welcome quality criteria. Making health services young people friendly. 2005 (www.dh.gov.uk)

44. Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: developmental issues. Arch Dis Child 2004; 89:938-42.

45. Berry SL, Hayford JR, Ross CK, et al. Conceptions of illness by children with juvenile rheumatoid arthritis: a cognitive developmental approach. J Pediatr Psychol 1993; 18:83-97.

46. Shaw KL, Southwood TR, McDonagh JE What's in a name? Disease knowledge in juvenile idiopathic arthritis (JIA). Arch Dis Child 2004; 89(Suppl. 1):A44.

47. Schubiner H, Eggly S. Strategies for health education for adolescent patients: a preliminary investigation. J Adolesc Health 1995; 17:37-41.

48. Goldenring JM, Cohen E. Getting into adolescent heads. Contemp Pediatr 1988; July: 75-80.

49. McDonagh JE, Kelly DA. Transitioning care of the pediatric recipient to adult caregivers. Pediatr Clin N Am 2003; 50(6):1561-83, xi-xii.

50. Robertson LP, McDonagh JE, Southwood TR, Shaw KL. Growing up and moving on. A multicentre UK audit of the transfer of adolescents with Juvenile Idiopathic Arthritis JIA from paediatric to adult centred care. Ann Rheum Dis 2006; 65:74-80.

51. Yeo MSM, Bond LM, Sawyer SM. Health risk screening in adolescents: room for improvement in a tertiary inpatient setting. Med J Aust 2005; 183(8):427-9.

52. Kowpak M. Adolescent health concerns: a comparison of adolescent and health care provider perceptions. J Am Acad Nurse Pract 1991; 3:122-8.

53. Carroll G, Massarelli E, Opzoomer A, et al. Adolescents with chronic disease: are they receiving comprehensive health care? J Adolesc Health Care 1983; 17: 32-6.

54. McDonagh JE, Southwood TR, Shaw KL. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care 2006; 10(1):22-42.

55. Palmero TM. Impact of recurrent and chronic pain on child and family daily functioning: a critical review of the literature. J Dev Behav Pediatr 2000; 21: 58-69.

56. Shaw KL, Southwood TR, McDonagh JE. Growing up and moving on in Rheumatology: parents as proxies of adolescents with Juvenile Idiopathic Arthritis. Arthritis Care Res 2006; 55(2):189-98.

57. Woodgate RL. Adolescents' perspectives of chronic illness: "it's hard". J Pediatr Nurs 1998; 13(4):210-23.

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