References

ASR Joint Regen Review

Natural Solution for Rheumatoid Arthritis

Get Instant Access

1. Shaw KL, South wood TR, McDonagh JE. "User's perspectives of Transitional care for adolescents with Juvenile Idiopathic arthritis. Rheumatology 2004; 43: 770-8.

2. Shaw KL, Southwood TR, McDonagh JE. Transitional Care for Adolescents with Juvenile Idiopathic Arthritis: results of a Delphi Study. Rheumatology 2004; 43:1000-6.

3. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM, Society for Adolescent Medicine. Transition to adult health-care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health 2003; 33(4):309-11.

4. American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians-American Society of Internal Medicine. A consensus statement on health-care transitions for young adults with special health-care needs. Pediatrics 2002; 110(6 Pt 2):1304-6.

5. Canadian Paediatric Society. Care of adolescents with chronic conditions. Paediatr Child Health 2006; 11(1):43-8 (http://www.cps.ca/english/publica-tions/AdolesHealth.htm).

6. Department of Health. Getting the right start: National Service Framework for Children. Standard for Hospital Services. 2003 (www.dh.gov.uk)

7. Department of Health. National Service Framework for Children, Young People and Maternity Services (Core Standard 4). 2004 http://www.dh.gov.uk

8. Department of Health. Transition: getting it right for young people. Improving the transition of young people with long-term conditions from children's to adult health services. Department of Health Publications, 2006, London www. dh.gov.uk/transition

Royal College of Nursing. Adolescent transition care: guidance for nursing staff. 2004 London (www.rcn.org.uk)

Royal College of Paediatrics and Child Health. Bridging the Gap: Health-care for Adolescents. 2003 (http;//www.rcpch.ac.uk)

Ryan RM, Deci EL. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Am Psychol 2000; 55(1):68—78. Bremer CD, Kachgal M, Schoeller K. Self-Determination: Supporting Successful Transition. Research to Practice Brief: Improving Secondary Education and Transition Services through Research (Electronic version). National Center on Secondary Education and Transition, 2003; Vol. 2. (Retrieved June 16, 2005, from http://ncset.org/publications/viewdesc.asp? id = 962).

Werner E, Smith R. Overcoming the odds: High risk children. Ithaca, NY: Cornell University Press, 1992.

Holmbeck GN, Johnson SZ, Wills KE, et al. Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: the mediational role of behavioral autonomy. J Consul Clin Psychol 2002; 70(1):96-110.

Malian I, Nevin A. A review of self-determination literature - Implications for practitioners. Remedial and Special Education 2002; 23(2):68-74. Wehmeyer ML, Palmer SB, Agran M, Mithaug DE, Martin JE. Promoting causal agency: The self-determined learning model of instruction. Exceptional Children 2000; 66(4):439-53.

Kieckhefer GM, Trahms CM. Supporting development of children with chronic conditions: from compliance toward shared management. Pediatric Nursing 2000; 26:354-63.

Yamaki K, Fujiura GT. Employment and income status of adults with developmental disabilities living in the community. Intellectual disability. 2002; 40(2):132-41.

Scal PS, Larson MI, Blum RW. Young Adults with Childhood onset disability making their way into Adulthood. Pediatric Research 2002; 53:1287. Barnow BS, King CT. Workforce Investment Act in Eight States, (Electronic version) United States Department of Labor Employment and Training Administration Occasional Reports 2005-1 (AK-12224-01-60). Retrieved June 16, 2005: www.doleta.gov/reports/searcheta/occ/papers/FINAL_DOL_ Workforce_Academy_Report.pdf

United States Department of Labor Employment and Training Administration. Map of State One-Stop Websites (2005). Retrieved June 16, 2005 from www. doleta.gov/usworkforce/onestop/onestopmap.cfm

Department for Education and Skills (DfES) Special Educational Needs Code of Practice. 2001. DfES, London, U.K.

United States Department of Labor, 2005. Work activity of high school students: Data from the National Longitudinal Survey of Youth 1997. (Electronic version) United States DL reports: 05-732. Retrieved on June 16, 2005 from http://www.bls.gov/news.release/pdf/nlsyth.pdf Houtenville, Andrew J. Disability Statistics in the United States. Ithaca, NY: Cornell University Rehabilitation Research and Training Center on Disability

Demographics and Statistics (StatsRRTC), www.disabilitystatistics.org. 2005. Posted April 4, 2005. Accessed June 02, 2005.

25. McDonagh JE, Foster H, Hall MA, Chamberlain MA. Audit of rheumatology services for adolescents and young adults in the United Kingdom. Rheumatology 2000; 39:596-602.

26. Shaw KL, Hackett J, Southwood TR, McDonagh JE. Vocational issues in juvenile idiopathic arthritis. The adolescent perspective. Br J Occupational Therapy 2006; 69(3):98-105.

27. Beresford B, Sloper T. The information needs of chronically ill or physically disabled children and adolescents. Social Policy Research Unit, York, 2000.

28. Bateman BJ, Finlay F. Long term medical conditions: career prospects. Arch Dis Child 2002; 87:291-2.

29. Shaw KL, Hackett J, Southwood TR, McDonagh JE. The Prevocational and Early employment needs of adolescents with juvenile idiopathic arthritis: the occupational therapy perspective. British Journal of Occupational Therapy 2006; 69:497-504.

30. McPherson M, Weissman G, Strickland BB, van Dyck PC, Blumberg SJ, Newacheck PW. Implementing community-based systems of services for children and youths with special health-care needs: how well are we doing? Pediatrics. 2004; 113(5 Suppl.):1538-44.

31. Newacheck PW, Kim SE. A national profile of health-care utilization and expenditures for children with special health-care needs. Archives of Pediatrics & Adolescent Medicine. 2005; 159(1):10-7.

32. Anderson LL, Larson SA, Lakin KC, Kwak N. (2003). Health insurance coverage 30. and health-care expenses of persons with disabilities in the NHIS-D. DD Data Brief 5 (1). Minneapolis: University of Minnesota, Research and Training Center on Community Living 2003.

33. Liptak GS, Accardo PJ. Health and social outcomes of children with cerebral palsy. J Pediatr 2004; 145(2 Suppl.):s36-41.

34. World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.

35. White PH. Access to health-care: health insurance considerations for young adults with special health-care needs/disabilities. Pediatrics 2002; 110(6 Pt 2): 1328-35.

36. Shaw KL, Southwood TR, McDonagh JE. Young People's satisfaction of transitional care in adolescent rheumatology in the United Kingdom. Child: Care, Health & Development 2007; 33:368-79.

37. Robertson LP, McDonagh JE, Southwood TR, Shaw KL. Growing up and moving on. A multicentre United Kingdom audit of the transfer of adolescents with Juvenile Idiopathic Arthritis JIA from paediatric to adult centred care. Ann Rheum Dis 2006; 65:74-80.

38. Reiss JG, Gibson RW, Walker LR. Health-care transition: youth, family, and provider perspectives. Pediatrics 2005; 115(1):112-20.

39. Larson S, Lakin C, Huang J. DD Data Brief: Service Use by and Needs of Adults with Functional Limitations or ID/DD in the NHIS-D: Difference by Age, Gender, and Disability. DD Data Brief 5 (2) p. 10. Minneapolis:

University of Minnesota; Research and Training Center on Community Living, 2003.

Reiss J, Gibson R. Health-care transition: destinations unknown. Pediatrics 2002; 110(6 Pt 2):1307-4.

Rosen D. Between Two Worlds: Bridging the cultures of Child health and adult medicine. J Adol Health 1995; 17:10-6.

Viner RM. Transition from Pediatric to Adult Care. Bridging the gaps or passing the buck? Arch Dis Childhood 1999; 81:271-5.

White PH, Gallay L. Youth with Special Health-care needs and Disabilities in Transition to Adulthood in On Your Own without a Net (Eds. D. Wayne Osgood, E Michael Foster, Constance Flanagan and Gretchen Ruth), Univ Chicago Press 2005, pp. 349-74.

Scal P, Ireland M. Addressing transition to adult health-care for adolescents with special health-care needs. Pediatrics 2005; 115:1607-12. Lam PY, Fitzgerald BB, Sawyer SM. Young adults in children's hospitals: why are they there? Med J Aust 2005; 182(8):381-4.

White PH, Hackett P, Turchi R, Gatto M. The Needs of Pediatric Practices for Policy and Procedures to Facilitate Youth with Special Health-care Needs Transition to Adulthood. Presented Pediatric Academic Societies Meeting (abstract) May 2006.

McDonagh JE, Southwood TR, Shaw KL. Unmet adolescent health training needs for rheumatology health professionals. Rheumatology 2004 43:737-43. Blum RW, Bearinger LH. Knowledge and attitudes of health professionals toward adolescent health-care. J Adol Health-care 1990; 11:289-94. McDonagh JE, Minnaar G, Kelly KM, O'Connor D, Shaw KL. Unmet education and training needs in adolescent health of health professionals in a United Kingdom Children's Hospital. Acta Paediatrica 2006; 95(6):715-9. Reeve DK, Lincoln NB. Coping with the challenge of transition in older adolescents with epilepsy. Seizure 2002; 11:33-9.

McDonagh JE, Southwood TR, Shaw Kl. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicenter cohort of adolescents with Juvenile idiopathic arthritis. J Child Health-Care 2006; 10:22-42.

Scal P. Transition for youth with chronic conditions: primary care physicians' approaches. Pediatrics. 2002; 110(6 Pt 2):1315-21.

Wolf-Branigin M, Schuyler V, White PH. Improving Quality of Life and Career Attitudes of Youth with Disabilities: Experiences from the Adolescent Employment Readiness Center. Research on Social Work 2007; 17(3):324-33. Betz CL. Transition of adolescents with special health-care needs: review and analysis of the literature. Issues in Comprehensive Pediatric Nursing 2004; 27(3):179-241.

McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 2007; 46(1):161-8.

While A, Forbes A, Ullman R, Lewis S, Mathes L, Griffiths P. Good practices that address continuity during transition from child to adult care: syntheses of the evidence. Child: Care, Health and Development 2004; 30(5):439-52.

57. Chamberlain MA, Rooney CM, Young Adults with arthritis: meeting their transitional needs. Br J Rheumatol 1996; 35:84-90.

58. Beresford B. On the road to nowhere? Young disabled people and transition. Child: Care, Health and Development 2004; 30(6):581-7.

59. Rettig P, Athreya BH. Adolescents with Chronic Disease: transition to adult health-care. Arthritis Care and Research 1991. 4:174-80.

60. Liptak G. S. Enhancing patient compliance in pediatrics. Pediatrics in Review. 1996; 17(4):128-34.

61. Reid GJ, Irvine MJ, McCrindle BW, et al. Prevalence and correlates of successful transfer from pediatric to adult health-care among a cohort of young adults with complex congenital heart defects. Pediatrics 2004; 113(3):197-205.

62. Shaw KL, Southwood TR, McDonagh JE. What's in a name Disease knowledge in Idiopathic arthritis. Arch Dis Child 2004; 98(Suppl.):A44.

63. Berry SL, Hayford JR, Ross CK, Pachman LM, Lavaigne JV. Conceptions of illness by children with juvenile rheumatoid arthritis: a cognitive developmental approach. J Pediatr Psychol 1993; 18(1):83-97.

64. Callahan ST, Cooper WO. Continuity of Health Coverage Among Young adults with disabilities. Pediatrics 119:1175180.

65. Schulzinger R. Youth with Disabilities in Transition: Health Insurance Options and Obstacles. An occasional policy brief of the Institute for Child Health Policy, 2000, Gainesville, FL, p. 4.

66. Hackett P, Gallivan G. Public and private insurance plans: Understanding the options for YSHCN (Electronic version). Healthy and Ready to Work National Center Tip Sheet (2003). Retrieved June 16, 2005, from http://www. hrt.org/healthcare/hlth_ins.html

Was this article helpful?

0 0
Arthritis Joint Pain

Arthritis Joint Pain

Arthritis is a general term which is commonly associated with a number of painful conditions affecting the joints and bones. The term arthritis literally translates to joint inflammation.

Get My Free Ebook


Post a comment