Contents

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Preface v

Acknowledgments vii Contributors xi

1. Being a Teenager in the Twenty-First Century 1 Janet E. McDonagh

2. The Teenage Brain 13 Gerald Ullrich

3. Growing Pains: Growth and Puberty 31 Priscilla L. Campbell-Stokes and Nick J. Shaw

4. Creating a Listening Culture: Communicating with Young People 65 Janet E. McDonagh

5. "When I Remember to ...": Adherence and Chronic Rheumatic Diseases 85

Fabienne Dobbels and Karen L. Shaw

6. The Disease Spectrum of Adolescent Rheumatology 107 Liza J. McCann and Debajit Sen

7. The Young Adult with Juvenile Idiopathic Arthritis 149 Jon C. Packham

8. The Young Person with Systemic Lupus Erythematosus 169 Lori B. Tucker

9. Adolescent Chronic Pain 183 Jacqui G. Clinch

10. The Young Person with Back Pain 207 Suzanne C. Li and Yukiko Kimura

11. Adolescents with Joint Pain: A Sports Medicine Perspective 233

Rebecca A. Demorest

12. The Young Person with Low Bone Mineral Density 267 Rolando Cimaz and Maria Luisa Bianchi

13. Health Issues of Adolescents 291 Donald E. Greydanus and Dilip R. Patel

14. Walking the Talk: Parenting Adolescents with a Chronic Condition 311

Helena Fonseca and Marcelle de Sousa

15. Making Connections, Getting Connected: Peer Support and Chronic Rheumatic Disease 329

Janine Hackett and Bernadette Johnson

16. Growing Up: Transition from Adolescence to Adulthood 345

Patience H. White

17. Education and Training Needs for Health Professionals in Adolescent Rheumatology 367

Lindsay Robertson

18. How Can We Develop Adolescent Rheumatology Care That Continually Improves Outcomes for Young People? 379 Boel Andersson Gare and Marjorie M. Godfrey

19. Young People Have the Last Word 399

Amy Abrams, David Lewis, Toni Neufille, Akikur Rahman and Heather Clarke

Index 421

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